Please move....
K has been waking up in the middle of the night and coming into our room, requesting me to move. Not even kidding, he stands over me and pokes me in the back and once he has my attention, he says, "Please move". I have learned over time to try and get him to tell me why he is awake. It can be very tough especially if I am out of it. At 3 AM, he points to his head and I asked him if it hurt, he said yes. He climbed right in and I retreated to sleeping in his bed.
Rewind to Saturday morning, he is up around 3:30 AM telling me he is scared, climbs into our bed and I head to his bed instead.
K had an extended day at school. He had a good day, however the report from his in class visit mentioned he needed prompts in social interaction. He was able to complete a project as the teacher directed.
This evening, after having a few bites of dinner, he took NAC with a spoonful of applesauce.
Dinner: 6 PM
NAC: 6:15 PM
This blank stare came over his face, tears began to well up in his eyes and he started bawling, at 6:25 PM. I was a little startled myself as this very unusual moment crept up out of nowhere. He looked at me and told me to "go away". Now I am worried. After a very calm, eye to eye, work it out style conversation, he said his head hurt, but the boo boo went away. What the heck is going on? Is the second dose of this supplement causing headaches. Or maybe he has a headache and it amplifies the discomfort? This is the most difficult issue. Forgive me for ever repeating it, but not being able to discuss what is happening inside of him and him being upset and defeated because mom and dad can not help treat him is absolutely awful. We've come so far, so so far. He can talk, he can understand, but he can not put words or an outward emotion to let us know something is wrong. It can be a guessing game day in and day out. I might have the world record of longest sigh after this one.
But to end this on a bright note, I can openly admit that last night was the first time I felt like our son and I were holding a conversation. The realization was so calming, warm and fuzzy, almost dreamlike. This sounds really cheesy, but it is true. He was able to carry on with me and used clearer sentences, all appropriate words and accurate use of them. I mean, how could I NOT be proud of him saying, "Hey, get out of my room!", that is a complete sentence filled with raw emotion. You can go ahead and chuckle, I smiled over it.
While K was struggling to wind down before bed, I was in his room with him just being goofy right along side him. Even his sister joined in out of curiosity. We worked on something adding and subtracting while he made imaginary peanut butter and jelly sandwiches. He would start with a total amount and I would gobble those tasty treats up, he would then have to tell me how many were left. He giggled the whole time. I can appreciate how he has this will to learn so much despite the hindrances he is presented with. Once we all calmed down and just laid in his bed under the blankets, pretending to gaze at the glow in the dark stars, moon and planets all over his ceiling, he requested his white brush (Wilbarger White Brush). We don't usually use this item anymore, but it has helped him in the past few months once we established he had some sensory integration issues. Instead of requiring we brush all of his limbs, his back and stomach, he usually just wants the underside of one hand done. He falls asleep in the midst of it. Hopefully he sleeps a little more sounder tonight.
Rewind to Saturday morning, he is up around 3:30 AM telling me he is scared, climbs into our bed and I head to his bed instead.
K had an extended day at school. He had a good day, however the report from his in class visit mentioned he needed prompts in social interaction. He was able to complete a project as the teacher directed.
This evening, after having a few bites of dinner, he took NAC with a spoonful of applesauce.
Dinner: 6 PM
NAC: 6:15 PM
This blank stare came over his face, tears began to well up in his eyes and he started bawling, at 6:25 PM. I was a little startled myself as this very unusual moment crept up out of nowhere. He looked at me and told me to "go away". Now I am worried. After a very calm, eye to eye, work it out style conversation, he said his head hurt, but the boo boo went away. What the heck is going on? Is the second dose of this supplement causing headaches. Or maybe he has a headache and it amplifies the discomfort? This is the most difficult issue. Forgive me for ever repeating it, but not being able to discuss what is happening inside of him and him being upset and defeated because mom and dad can not help treat him is absolutely awful. We've come so far, so so far. He can talk, he can understand, but he can not put words or an outward emotion to let us know something is wrong. It can be a guessing game day in and day out. I might have the world record of longest sigh after this one.
But to end this on a bright note, I can openly admit that last night was the first time I felt like our son and I were holding a conversation. The realization was so calming, warm and fuzzy, almost dreamlike. This sounds really cheesy, but it is true. He was able to carry on with me and used clearer sentences, all appropriate words and accurate use of them. I mean, how could I NOT be proud of him saying, "Hey, get out of my room!", that is a complete sentence filled with raw emotion. You can go ahead and chuckle, I smiled over it.
While K was struggling to wind down before bed, I was in his room with him just being goofy right along side him. Even his sister joined in out of curiosity. We worked on something adding and subtracting while he made imaginary peanut butter and jelly sandwiches. He would start with a total amount and I would gobble those tasty treats up, he would then have to tell me how many were left. He giggled the whole time. I can appreciate how he has this will to learn so much despite the hindrances he is presented with. Once we all calmed down and just laid in his bed under the blankets, pretending to gaze at the glow in the dark stars, moon and planets all over his ceiling, he requested his white brush (Wilbarger White Brush). We don't usually use this item anymore, but it has helped him in the past few months once we established he had some sensory integration issues. Instead of requiring we brush all of his limbs, his back and stomach, he usually just wants the underside of one hand done. He falls asleep in the midst of it. Hopefully he sleeps a little more sounder tonight.
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